I still take a morning walk. I have walked all my life and I am not stopping now just because I can't go as far or as fast. I have to use a walking stick or I wobble about and may fall over. My doctors tried to persuade me to use a walker last month, but I do not feel I am ready for that step yet. For as long as I can I will stick to my stick.
I use to take many of my walks in Brandywine Creek State Park, which I favor. I hadn't been in that park since the ALS symptoms showed up in late May 2016. But I miss those trails so much that this past week I decided to test it out. That first picture is me testing it out. Could I possibly return to walking there?
The answer is , No!
I went down from the parking lot at Thompsons Bridge to the east bank of the creek and turned north
Used to be I would have continued straight, crossing a gully and run upon a fallen tree truck into a
cornfield beyond. No way I dared risk such a ford anymore. Therefore, I headed up the side trail away from Mosquito Alley for the higher and drier ground of Piken Creek Road. (By the way, I have never figured out where this Piken Creek is.)
Even though Piken Creek Road is a portion of the Northern Delaware Greenway running through this park and is well traveled and wide, it is still rutted and rock strewn. I found it more difficult
Last months my wife, Daughter Laurel and I did visit Longwood
I had to pause in the middle of my writing due to cramps in both hands. This is another nice present I have received with the ALS. Some days the attacks are very light, occasionally even a cramp free one. Today was not one of those days. Perhaps our dreary, damp, high humidity weather had some influence over my muscles, or maybe an evil minion of the Devil came to torment, but I had much cramping all day. I had a number of very painful ones in my legs, but I also had a back and forth series of cramps in my hands, like they were playing ping pong with pain. The hand cramping just wouldn't let up and I finally had to walk away from the keyboard for a while. Of course, as soon as I got to the living room and sat down I got hit with a stubborn cramp in my left leg.
The weakness continues to gradually grow, as does my lack of balance. My hands are the weakest
As much as the physical deterioration annoys me, I am more concerned about the mental. They use to believe ALS had no effect on the brain, but in the last decade or so they have found it does. Hopefully, I won't go as far as getting frontal lobe dementia, but I am having some cognitive problems. Here is a list of what could happen but has not, at least not yet and I would prefer they don't:
Anyway, I am still around doing the best I can. I will admit that I am lonely.